A Day in the Life of a British Epileptic

James Prescott

James Prescott

Today I had the privilege to interview one of my favorite Brits, James Prescott. We met about 18 months ago through a shared writing course, and quickly discovered we both have seizure disorders, both write about how to survive with our faith intact in a busted world, and both attend Vineyard churches. Since then, we have become fast friends.

While epilepsy has many causes and can appear in a variety of ways across different individuals, here are some details about James’ history:

  • James was diagnosed with epilepsy at 9 years old and he was told he would be epileptic for the rest of his life. Since then, his seizures have ranged from once a month to no seizures for 4 years.
  • Aspartame increased James’ seizures dramatically. You can find out more about aspartame here, here, and here, and a list of drinks with aspartame is here.
  • “Epilepsy does not dominate my life, but it is a part of my life and I cannot escape it.”

Some of James’ more remarkable seizure incidents are highlighted in this video:

  • James fell off a platform and onto a railway track when he had a seizure. Only the kindness of strangers saved his life.
  • James nearly walked around the streets on London with a bloody face “looking like a homeless guy”.
  • He had a seizure while on the toilet and they had to knock the door down.

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Other important things James talks about:

  • He has never driven anything other than a go-cart, but he loves THAT.
  • “The health of my soul is tied to my epilepsy.”
  • ‘After a seizure, you’re knackered because it’s like running a marathon in two minutes’ time.”
  • The guilt you feel when people pray for you and you don’t get healed…as if you’ve done something wrong somehow.
  • “I don’t have seizures because something is wrong, I just have seizures because my brain is wired that way.”
  • James has a very unique book about grace coming out soon, and he talks some about it in an essay he wrote for Sarah Bessey.

Hope you enjoy this interview:

If you’ve enjoyed learning about James, you can find out more at his blog, or connect with him on Facebook or Twitter.

Please ask any questions or voice any concerns about epilepsy or James’ story. Would love to see some dialogue here about this illness, which is very dear to my heart.

A Day in the Life of Anxiety Arthritis and Writing

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Meet Stephanie Fishman. A fellow writer, I actually met her through an unusual conversation where we talked (as strangers) about blog themes and preferences. From there, with the help of a few otters [long story], we have become friends. Stephanie is able to straddle the fiction and nonfiction world with her writing, for which I will always have unending admiration for her. But I need to stop telling her story now. This is an interview, after all…

What is your

illness or illnesses?

I’m living with anxiety/panic disorder and arthritis as well as some chronic pain/injuries. I choose not to say that I suffer from it though. I’m more than the sum of the illnesses. They are just part of my daily life. [Want to tweet that? I do, and I did!]

Give me a snapshot

into a day in your life.

Weather, diet, and sleep affect my body, as does the stress of everyday life. I plan my schedule around the weather. Rainy days will usually find me at home as do cold days in winter. I’ve given myself permission to listen to my body and respond without worrying about what others think.

Lack of sleep can trigger anxiety and also make my pain levels rise, so I try to ignore an alarm clock and give my body the sleep that it needs.

I tend to work in different positions: sitting at a desk, in a comfortable chair with my feet up, or even in bed. I go where it feels comfortable. My laptop is my best friend. Having a flexible schedule and career as a writer has made that easier.

I’ve learned to stop apologizing for myself. I’m the only one that can live my life. I have to do what is best for me and my family, which is making sure that I am healthy and productive at home before meeting the social needs of others. {Love the boundaries Stephanie is setting here. Sounds like these are the result of some hard-fought battles}

I am sure you have some days where an event or deadline cannot be moved, but you don’t have the energy/health to push through. What do you do in these situations?

Cry. Literally. Then I pick myself up, try to push through the best I can, and attempt to keep the self-guilt to a minimum. There have been projects that I’ve had to say no to or refer to someone else.

Some days I’m just not able to do it no matter how desperately I want it. Other times, I am able push through and pay the price the next day. It really depends on what I am dealing with.

If it’s a high pain day (like today), I just do what needs to be done with frequent breaks. If it’s a day with heavy panic attacks, there isn’t anything I can do no matter how determined I might be to work through it. I just have to let it play out and then play catch up or apologize depending on the situation. Those are the days that I really have to watch the self-talk. It’s too hard to beat up on myself when I feel like I’m letting others down.

What are some of the biggest

challenges with your condition?

With anxiety, you are dealing with an illness that is essentially invisible. It makes it hard for people to take it seriously. It’s also hard for people to know when I’m having good days vs the bad, because there is no physical reminder.

When I have a flare up of pain, it takes a lot out of me. It isn’t just the pain levels that slow me down. Constant pain is draining. It makes it hard to concentrate. I feel less creative and have a harder time writing.

I’m preoccupied, so I feel like I’m moving at half the speed that I usually do. It’s also physically exhausting. It may take me twice as long or twice as much energy to accomplish something that I did with ease the day before. It’s also embarrassing when you have to ask someone else to open a jar or carry a laundry basket because you just can’t.

What are some accomplishments you are particularly proud of?

Launching my first book, Finding Eliza, was a stressful and exciting time. I was able to keep on schedule and managed to step out of my comfort zone on several occasions. Sharing work publicly is exciting, and I was able to keep the “scary factor” to a minimum.

Finding Eliza

Finding Eliza

Tell us some more

about that book.

It’s a story that is part contemporary fiction and part historical fiction twisted together with some humor, history, and heartache (and healing!) I have wanted to write for years, and as a birthday approached I decided this was the best gift I could give myself.

When Lizzie Clydell agreed to join her grandmother at the church’s genealogy group meeting she expected nothing more than lemon squares and a few stories. Instead, an old diary leads Lizzie down a dusty road of lies, hidden family secrets, and a lynching that nearly destroyed her family.

What are some struggles

nobody sees?

For a person with an anxiety disorder, making simple conversations or trips into a crowded store can feel like you are asking us to move mountains. A minor note to your day may take us an hour to prepare for.

Unfortunately, there are those in the “just suck it up” camp that don’t understand. It’s hard not to let those voices into your head. I lean on scripture and friends/family to keep out those dragons. Sometimes you have to pull back, assess your connections, and realize that part of self-care is knowing who to let into the castle gates and who to keep at a distance. You can’t control what people think but you can control what you hear simply by keeping the naysayers outside your inner circle.

What are some phrases that people use when talking to you, that you wish they would just stop using?

“Calm down.” That phrase is like a ticking time bomb to me. Anxiety and panic attacks are not fun, so I don’t choose them. If I could stop it, I would without needing a reminder to calm down. The stress and anxiety builds and builds because I can’t control it. Reminding me that I’m not like the average bear only makes it worse.

“Get over it.” Just like my arthritis, my anxiety isn’t something that I can control. I can’t just make myself better by thinking nice thoughts. Telling me that not only demeans me, but it also makes it that much harder because now I’m worried about your additional stress.

Are there people who have been spectacular supports for you?

I have a wonderful group of friends and family who try to encourage me and help me in any way that they can. I have a small circle that hear the ugly parts and will text me or email me during them (because they know that sometimes a phone call is too much.) My mother and daughter have helped me tremendously.

This summer, I’ve found myself in the position of single/divorcing mother trying to build a career to support myself and my daughter. It’s been a hard journey combined with panic attacks and pain. My family has been a huge support to me on the days that I just can’t do it all.

Do you feel that you are a resilient person? Have you always been that way (resilient or not resilient)? If not, what changed so you are who you are now?

I do, but not every day! There are days where I feel weak and broken.I have to remember that God didn’t say the journey would be easy. He only said that He would be with me along the way. In my younger life I was resilient through adversity because I was strong for others.

The hardest battle now is to be strong for myself. It takes a different type of determination and strength. I’m still learning but hopefully I get stronger every day. I’m learning to become proud of what I have accomplished.

We need to be thankful and proud of what we’ve accomplished in the midst of that difficulty, no matter what that difficulty is. It isn’t boasting to be proud of what you’ve worked so hard to accomplish especially when dealing with adversity of any sort.

Have a question or comment to encourage Stephanie — comment below!

A Day in the Life of Breast Cancer and a Heart Attack

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Today I have the privilege of sharing some of Brenda McGraw’s story through a video interview.  {Bear with any glitches you see…I haven’t done video before} Please watch so you can hear Brenda’s heart. Here are some of my favorite moments from the interview, to whet your appetite:

I was 24 years old, which is very young to be diagnosed with breast cancer. I had been married five years, and things were not going so well. I’m in the prime of my life. This isn’t supposed to be happening to me.

 

People don’t know how to handle someone who is diagnosed with something serious. We actually lost some friends through the breast cancer diagnosis.

People feel sorry for you, but so many really don’t know what to do. This is true even in my family. My own mom didn’t know how to handle it. My momma couldn’t even stay at the hospital with me because she didn’t want to see her own daughter go through this. But my sister was my hero.

 

Even if you’ve been through cancer, you don’t know exactly how someone else feels. It’s best not to say, “I know how you feel”.  Instead of saying, “How can I help,” just do something. Instead of asking how you can pray for someone, stop right then and pray for them.

 

I’ve had cancer, I’ve been divorced, and now I have a heart attack. Come on God!

The doctor said if you’re conscious enough to take an aspirin,

you should seriously go to the hospital.

You get so overwhelmed with life, trying to deal with all the pressures we put on ourselves and others put on us. We just have to watch the signs in our lives and listen to our bodies more.

 

We have to learn to ask this question–What can I do to rise above the circumstances in our lives? [Wanna tweet that? You can by clicking here.]

 

I kept asking God the question WHY? Do you love me? Why are you allowing this to happen? I learned that He doesn’t cause these things, but He does use the things that happen in our life to refine or sharpen us.

Because of His love,

no matter what comes our way,

He will be with us.

(If you are reading this in your email and the video does not show up, click here to watch it through your browser)


Brenda McGraw is the author of, “Joy Beyond, 28 Days to Finding Joy Beyond the Clutter of Life,” which includes a BONUS section with 28 stories of those who found joy through Christ and beyond their trials.  You can find her book on Amazon or on Ask God Today. You can connect with her on Facebook or Twitter too.