A Day in the Life of a British Epileptic
While epilepsy has many causes and can appear in a variety of ways across different individuals, here are some details about James’ history:
- James was diagnosed with epilepsy at 9 years old and he was told he would be epileptic for the rest of his life. Since then, his seizures have ranged from once a month to no seizures for 4 years.
- Aspartame increased James’ seizures dramatically. You can find out more about aspartame here, here, and here, and a list of drinks with aspartame is here.
Epilepsy does not dominate my life, but it is a part of my life and I cannot escape it.
Some of James’ more remarkable seizure incidents are highlighted in this video:
- James fell off a platform and onto a railway track when he had a seizure. Only the kindness of strangers saved his life.
- James nearly walked around the streets on London with a bloody face “looking like a homeless guy”.
- He had a seizure while on the toilet and they had to knock the door down.
Other important things James talks about:
- He has never driven anything other than a go-cart, but he loves THAT.
- “The health of my soul is tied to my epilepsy.”
After a seizure, you’re knackered because it’s like running a marathon in two minutes’ time.
- The guilt you feel when people pray for you and you don’t get healed…as if you’ve done something wrong somehow.
- “I don’t have seizures because something is wrong, I just have seizures because my brain is wired that way.”
- James has a very unique book about grace coming out soon, and he talks some about it in an essay he wrote for Sarah Bessey.
Hope you enjoy this interview:
Please ask any questions or voice any concerns about epilepsy or James’ story. Would love to see some dialogue here about this illness, which is very dear to my heart.